Q1515833
Sign in to savethumb|right|230px|Orphanet logo Orphanet is an organisation and knowledge base dedicated to rare diseases as well as corresponding diagnosis, orphan drugs, clinical trials and expert networks.
Article
18 sectionsContents
- Available information
- Rare disease directory
- Diagnostic tests and testing facility directory
- Professional and institution directory
- Professionals
- Institutions
- Expert centre directory
- Orphan drug directory
- Research and clinical trial directory
- Research projects
- Clinical trials
- Patient organisations
- Activity Report and other publications
- On the Orphanet website
- ''Orphanet Journal of Rare Diseases''
- See also
- References
- External links
thumb|right|230px|Orphanet logo Orphanet is an organisation and knowledge base dedicated to rare diseases as well as corresponding diagnosis, orphan drugs, clinical trials and expert networks.
Orphanet was founded in France in 1997 by Inserm, the French National Institute of Health and Medical Research. The website is managed by a network of academic establishments from 40 countries, led by Inserm, and is a European Union Health Programme Joint Action. It contains content for both physicians and patients. Its administrative office is in Paris and its official medical journal is the Orphanet Journal of Rare Diseases published on its behalf by BioMed Central. , the site provides information on over 6,100 rare diseases and 5,400 genes.